August 26, 2025
Day 7: Leipzig Airport
We need to begin with grateful acknowledgement of all the kind comments received since yesterday. Typing is now very difficult, because of double vision and uncoordinated fingers. So this is a blanket thank you!
Here on the second or so day of this weird affliction, it's hard to come to grips with the reality of it. And going down to the breakfast room of the hotel, to see if I can swallow anything, it was strange to be the frightening, spastic guy lurching along the corridor!
Frightening too was trying to read up on the disease flagged by daughter Laurie and Dr. Google, something that maps all the symptoms and the onset exactly: Myasthenia Gravis. It's an often sudden onset but long term autoimmune disorder that interferes with nerves' communication with muscles - possibly across the whole body, including breathing and even holding eyelids up.
Confirmation of Drs. Laurie+Google will come via blood work. After that, there are a number of possible treatments, some new and/or experimental. But I suspect our small town local doctors will want to start with something they know (wait for it, Scott): Prednisone!
Before having to choose among the evil side effects and sketchy effectiveness of various drugs or surgeries, I need to make it back to Canada. Lying on my bed in the stagnant air of the Campanile Hotel, working hard to breathe, I think that oxygen would be good. But if I dial 112 (emergency) I will never leave Germany. It could not have been that bad, because a wet towel over the head seemed to revive me. So I am not dead yet, though the apparent death of who I used to be - the guy who would hoick a defective refrigerator out of the house, and drag a new one in, on his own, is hard to come to grips with. And what to do with all those sets of bikes and gear we have stashed all around. And who will drive that new EV we just bought?
Clearly all those questions are premature. Some good 'ole Prednisone and maybe I am back in action?
Tomorrow we need to wait here, because in a cruel manifestation of the Air Canada pricing algorithm, they want DOUBLE for us to fly Wednesday vs Thursday, and anyway their "cheaper" price is already double.
Sorry, no photos today, pigeons were too fast!
| Rate this entry's writing | Heart | 7 |
| Comment on this entry | Comment | 17 |
5 months ago
5 months ago
We might not get you back to hoicking 50lb feed bags around the farm but bike trips are not (yet) off the table!
anyways - happy we're getting you home and can start working on the puzzle. Love from the Seattle branch of the family.
5 months ago
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5 months ago
I just want to add my care and concern and best wishes as you make your way home and onto the next steps with all the medical tests, you will have ahead of you. I have long been a member of the Grampies’‘ fan club so I will be following daily and looking forward to positive news. Ardell
5 months ago
Good luck to the Grampies.
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4 months ago
4 months ago
I, too, will be thinking about both you and Dodie as you progress through this period of uncertainty, and am happy to help in any way I can. I would just toss in the fact that when patients came to see me after visiting Dr. Google, he was right about 10-20% of the time. For some reason, Dr. G always offers the worst possible outcomes. Bloodwork and an EMG will tell (and, if I know my medical systems, more bloodwork, then some imaging, them some more bloodwork after that... with a few additional blood draws here and there tossed in for good measure).
4 months ago
4 months ago